Percutaneous Endoscopic Gastrostomy in Children: What to Expect at Home

Have your child rest when your child feels tired.

Encourage your child to be active. Walking is a good choice.

If your child is an infant, follow your doctor's instructions about any activity that involves placing your child on their stomach.

Allow the area to heal. Don't let your child move quickly or lift anything heavy until your child is feeling better.

Your child may shower as usual. Pat dry the skin around the feeding tube. Do not let your child take a bath unless your doctor tells you it is okay.

If your child is an infant, follow your doctor's instructions about when and how to bathe your child after the procedure.

Follow the doctor's instructions about eating and drinking.

Follow the doctor's instructions about what nutrition and fluids to feed through your child's tube.

Your doctor will tell you if and when your child can restart any medicines. The doctor will also give you instructions about your child taking any new medicines.

If your child takes medicine through the feeding tube:

• Follow exactly your doctor's instructions about how to do this. Don't try to put whole pills in the feeding tube. They may get stuck. Ask your doctor if liquid medicine is available.

• Do not mix your child's medicine with tube-feeding formula. This can cause a clog in the feeding tube.

• Do not put more than one medicine down the feeding tube at a time.

• Flush the tube with water before and after you put each medicine down the tube.

Be safe with medicines. Read and follow all instructions on the label.

• If your child is not taking a prescription pain medicine, ask the doctor if your child can take an over-the-counter medicine.

• If the doctor gave your child a prescription medicine for pain, give it as prescribed.

• Store your child's prescription pain medicines where no one else can get to them. When you are done using them, dispose of them quickly and safely. Your local pharmacy or hospital may have a drop-off site.

Your doctor or nurse will show you how to care for the skin around your child's tube. Be sure to follow the instructions on keeping the area clean.

Wash the area daily with warm water, and pat it dry. Don't use hydrogen peroxide or alcohol. They can slow healing.

Keep the area clean and dry.

Follow your doctor's instructions about using the feeding tube. Your doctor or nurse will:

• Tell you what to put through the tube.

• Teach you how to watch for a leaking tube, infection at the tube site, or a clog in the tube.

• Tell you what activities your child can do.

Keep the feeding tube clamped unless you are using it.

Keep the tube taped to your child's skin at all times. Leave some slack in the tube. This helps prevent pain and keeps the tube from coming out.

Be careful the feeding tube doesn't become tangled around your child's neck. This can strangle your child. Your doctor or nurse can give you suggestions for how to keep the tubing from becoming wrapped around your child's neck.

Wash your hands before you handle the tube and tube-feeding formula. Wash the top of the can of formula before you open it.

Keep the formula in the refrigerator after you open it. Follow your doctor's instructions about how long formula can sit out at room temperature.

Help your child sit up or keep their head up during the feeding and for 30 to 60 minutes after.

If your child feels sick to the stomach or has stomach cramps during the tube feeding, slow the rate that the formula comes through the tube. Then gradually increase the rate as your child can tolerate it.

Your child passes out (loses consciousness).

Your child has severe trouble breathing.

Your child has chest pain, is short of breath, or coughs up blood.

Your child has severe belly pain.

Your child has new or worse pain.

Your child is fussy or seems to have pain that is not helped by acetaminophen (Tylenol) or ibuprofen (Advil, Motrin).

Your child has symptoms of infection, such as:

• Increased pain, swelling, warmth, or redness.

• Red streaks leading from the area.

• Pus draining from the area.

• A fever or chills.

The stitches that hold the feeding tube in place are loose or come out.

The feeding tube comes out.

The feeding tube is clogged, or liquid will not go down the tube.

Your child coughs a lot or has other trouble during tube feedings.

Your child has nausea, vomiting, or diarrhea.

You have any problems with the feeding tube.