Ileostomy in Children: What to Expect at Home

Allow your child's body to heal. Don't let your child move quickly or lift anything heavy until your child is feeling better. When your child is active again, a support belt can help secure the ileostomy pouch.

Have your child rest when they feel tired.

Your child will probably need to take 2 to 4 weeks off from school. But check with your doctor first.

Many children are able to return to normal activities within a few weeks after surgery.

Your doctor will tell you when your child can shower or take a bath after surgery. Your child can shower with or without the ileostomy bag. You don't need to worry about getting the stoma wet.

Your child may not have much appetite after the surgery. But try to help your child eat healthy foods.

Have your child drink plenty of fluids to avoid becoming dehydrated (unless the doctor tells you not to).

Give your child a low-fiber diet for several weeks after surgery. It's best for your child to eat many small meals throughout the day. Add high-fiber foods a little at a time.

Your doctor will tell you which foods are best for your child and which ones to avoid. This will help reduce gas and prevent runny stools and blockage of the stoma.

Your doctor will tell you if your child needs to take certain supplements, such as vitamins.

Be safe with medicines. Read and follow all instructions on the label.

• If the doctor gave your child a prescription medicine for pain, give it as prescribed.

• If your child is not taking a prescription pain medicine, ask the doctor if your child can take an over-the-counter medicine.

Your doctor will tell you if and when your child can restart their medicines. The doctor will also give you instructions about your child taking any new medicines.

If the doctor prescribed antibiotics for your child, give them as directed. Do not stop using them just because your child feels better. Your child needs to take the full course of antibiotics.

Your doctor will tell you if your child needs to take some medicines in a different form now that they have a stoma. You may need to crush pills or give your child a liquid form of the medicine.

If your child has strips of tape on the cut (incision) the doctor made, leave the tape on until it falls off.

Gently wash the area daily with warm water, and pat it dry. Don't use hydrogen peroxide or alcohol. They can slow healing.

You may cover the area with a gauze bandage if it oozes fluid or rubs against clothing.

Change the bandage every day or if it gets wet or dirty.

If the skin under your child's pouch is red, irritated, or itchy, you need to treat the skin. Follow these steps:

• Gently remove the pouch.

• Clean the skin under the pouch with water.

• Dry the skin.

• Sprinkle ostomy protective powder on the skin, and then blot it off.

• Reattach or replace the pouch.

• If your child keeps having skin irritation, talk to the doctor.

Follow all instructions from your doctor or ostomy nurse.

Empty and replace your child's ileostomy bag as often as directed by your doctor or ostomy nurse.

Your child passes out (loses consciousness).

Your child is short of breath.

Your child has pain that does not get better after taking pain medicine.

Your child has loose stitches, or the incision comes open.

Your child is bleeding through the bandage.

The skin around your child's stoma is red, has broken open, or is too wet.

You have trouble attaching the bag to the stoma.

Your child's stoma has bloody discharge or seems to be blocked.

Your child has symptoms of infection, such as:

• Increased pain, swelling, warmth, or redness.

• Red streaks leading from the incision.

• Pus draining from the incision.

• A fever.

Your child is sick to their stomach or can't keep down fluids.

Your child has signs of a blood clot in the leg (called a deep vein thrombosis), such as:

• Pain in the calf, back of knee, thigh, or groin.

• Redness and swelling in the leg or groin.

Your child's stoma changes color, such as turning dark red or black.

Your child's stoma sticks out above the skin or has sunk below it.

Your child has any problems with the stoma.