Cleft Lip Repair in Children: What to Expect at Home

Cleft lip repair is surgery to fix a split (cleft) in the lip. The doctor made a cut (incision) along the edges of the cleft lip extending up into the nose. Then the doctor used stitches to bring the cut edges together to shape the upper lip and nostrils.

Your child may need pain medicine for the first few days after surgery. The area around your child's mouth will be swollen for the first week or two after surgery. Your child may be more fussy than usual.

Most children are back to their usual behavior about a week after surgery. It usually takes about 3 to 4 weeks for the incision to heal. The incision will leave a pink or red scar. You can expect the scar to feel hard and tight at first. The scar should fade and become softer and flatter in the months and years after surgery.

Your child may need to wear a wire guard across their upper lip. This helps prevent the lip from stretching and protects the stitches from breaking or the skin edges from separating. Your child also may need to wear splints on their arms. The splints keep your child's arms straight so that your child can't rub the incision while it heals. Your child may need to wear the lip guard and arm splints for 10 to 14 days. If your child has a lip guard or arm splints, it is important to wear them for as long as the doctor recommends.

• Allow your child to slowly become more active. Have your child rest as much as needed. Make sure your child gets enough sleep at night.
• Put your child to sleep on their back. This will prevent your child from rubbing their lip on a blanket or the crib mattress.
• For the first few weeks after surgery:
  • Do not allow your child to do activities that could damage the incision.
  • Do not use a pacifier or let your child put a hand, toys, or other objects in their mouth.

• Follow the doctor's instructions for feeding your child. You may need to use a special bottle or syringe for the first few weeks to give your child breast milk or formula.
• Give your child plenty of fluids.
• You may notice a change in your child's bowel habits right after surgery. This is common. If your child has not had a bowel movement after a couple of days, call the doctor.

• Your doctor will tell you if and when your child can restart any medicines. The doctor will also give you instructions about your child taking any new medicines.
• Make sure that your child takes pain medicines exactly as directed.
  • If your child is not taking a prescription pain medicine, ask the doctor if your child can take an over-the-counter medicine.
  • If the doctor gave your child a prescription medicine for pain, give it as prescribed.
  • Do not give aspirin to children and teens. It has been linked to Reye syndrome, a rare but serious illness.
  • Store your child’s prescription pain medicines where no one else can get to them. When you are done using them, dispose of them quickly and safely. Your local pharmacy or hospital may have a drop-off site.
• If you think pain medicine is making your child sick to their stomach:
  • Give your child the medicine after meals (unless the doctor has told you not to).
  • Ask your child's doctor for a different pain medicine.
• Your doctor may prescribe antibiotics. Have your child take them as directed. Do not stop giving them to your child just because they feel better. Your child needs to take the full course of antibiotics.

• If there are strips of tape on the incision, leave the tape on for a week or until it falls off.
• If your doctor told you how to care for your incision, follow your doctor's instructions. If you did not get instructions, follow this general advice:
  • After the first 24 to 48 hours, wash around the incision with clean water 2 times a day. Don't use hydrogen peroxide or alcohol. They can slow healing.
• Keep the area clean and dry.

• After the incision heals, you can gently massage the scar each day. This may help soften the scar.
• Protect the scar from the sun for at least 3 to 4 months. Scars sunburn easily, and sun can make the scar more noticeable. After the cut has healed, apply sunscreen every time before your child goes outside.